Week 3, Day 3

I keep wondering if I had a prescription for a glass of wine each night, do you think the Ronald McDonald house would let me have it? J  I’m sure I could find a doctor that would agree that it is a medical necessity!!  I think Gavin and I are starting to suffer from too much togetherness.  I love him more than anything and would do anything for him, but our time here is wearing on us.  I keep reminding myself that he’s two, even though he is developing a 12 year olds attitude!  Thankfully, my parents are coming tomorrow!!!!!!  They are taking me out to dinner to celebrate my birthday and will be here for the weekend.  It will be nice to have a little relief!!  Sometimes you just need your mom and dad to make things betterJ.

Gavin did well at the clinic this morning.  He seemed to like the potato and chicken soup again, so that was great!  The technician who prepares Gavin’s foods senses my desire to expand Gavin’s limited diet, and she has decided to test his limits a little!  Naps continue to be a struggle here.  We have about an hour and forty-five minute break for my lunch when Gavin should be napping.  For whatever reason, Gavin will not go down for a nap.  I end up driving all over Evansville to get him to sleep.  He usually falls asleep after an hour!  Today I had had enough.  I brought him back to the clown house and he cried and screamed in bed fighting the nap.  He did fall asleep though…just before we had to leave to go back to the clinic!  Thankfully I was able to squeeze a little lunch in.  Gavin slept as I carried him to the car, drove the short distance to the clinic, and carried him up to the clinic’s playroom.  We skipped exercises and chewing to give him a few more minutes of sleep.  By some miracle, he actually woke up happy to take his bites!

The last session was a little rough.  Dr. Clawson wanted to test Gavin’s chewing abilities, so they had him practice chewing a piece of cheese and a blueberry muffin.  He wasn’t a fan of the cheese, but loved the muffin!  We decided to put the muffin in the rotation of purees and PediaSure to see how he did.  Everything was going great!  Gavin was chewing on the side of his mouth, his tongue was working, he was the poster child of chewing…almost.  Then, in the last bite of muffin, a piece got stuck on the back of his tongue and the gag started.  He has been so good at recovering from gags and not vomiting, but this was just too much.  EVERYTHING came back up…including some of the food from the previous meal two hours before.  It was not a pretty site.  Gavin just looked stunned, but did not cry thankfully.  He was a trooper and just continued eating once we cleaned everything up.  When the session was over, instead of running to the playroom, he bolted for the door, not even caring that his clothes were covered in vomit.  Poor kid.

We took a little break from eating and went to Chuck E Cheese’s with Lacy.  It was really nice to get out and have some company.  Gavin loved the little games and riding cars.  It was a good time!  When we came back, we met another family that is starting the intensive day feeding program tomorrow.  The have two kids, a 3 year old boy and a 14 month old girl.  The little girls was here for six months back in November, and this is the boy’s first time in the program.  Gavin had a lot of fun with more kids in the house.  Noah we still miss you though!!!  Gavin has been sleeping with his little doggyJ

I’m afraid we may have scared the new family during Gavin’s meal.  With only a 30 minute power nap, things tend to go downhill fast.  Monster Gavin had been hibernating for a few days, but I managed to wake him tonight!  Oh was he angry!  Thankfully there was not spitting, and we did manage to get some decent volume in him, but it’s just a tough way to end your day.

The best part of the day was when we received two packages!!!  Ms. Ann, a close family friend who runs the Humble ISD daycare that Gavin use to go, sent Gavin a huge package of toys, books, and stickers.  She had decorated the box with all kinds of animals, it was so cute.  Gavin loved them all!!!  With each thing we pulled out he’d say “open this! Open this!”  It was full of confetti, and Gavin had so much fun throwing it all over the place.  I almost told him to stop, but it was nice to hear him squeal with laughter and excitement!  Thank you so much Ann!!  We also got a box from Grammy and Grampy (Eric’s parents) with a book for Gavin and a birthday present for me J.  Thank you guys!  I love the shirt, bracelets, and body wash!