Sunday, March 30, 2014

Weekend 7

We made it through our last weekend here!!!  We had a nice low key weekend trying to keep up with all the feedings.  Gavin had a wonderful day as far as feeding is concerned on Saturday!  He had 37.4oz of food/milk in only four feeding sessions!!!  Our record volume of 38oz on Friday was with five meals.  I’m happy to see that Gavin can handle the same volume in fewer meal…for my sake!  It is exhausting to feed him so many times a day in such a rigid structured fashion.  With four meals in a day I will hopefully have time to make it to the grocery store once in a while. 

I spent most of the weekend in the kitchen again.  Today, it so nice because the volunteers who came to make dinner saw that it was a little challenging for me to cook and entertain Gavin at the same time.  They arrived at 2:00, and had plenty of time before dinner, so they took turns reading books to Gavin and playing with him.  It was a lifesaver!!  Gavin giggled all day longJ.

I have a feeling this week is going to fly by!!  We leave Saturday morning (after feeding Gavin of course) and head to Memphis to pick up Eric…he’s flying in around lunchtime.  We will drive to Little Rock that night and then finally back home on Sunday!!!!  I miss home.  I miss Eric.  It will be so good to be back to normal life again…well, our new normal with feeding Gavin real food!!  Eric ordered us a Blentec Blinder that they use here at the clinic.  It is amazing.  In 90 seconds, it can puree anything down to a smooth puree!  Gavin has done well with the increased texture of some foods, but it is a long process.  We typically have one or two gritty foods along with a smooth puree in each meal.  The bulk of his calories still come from this smooth puree.  The good news is that we do not seem to have issues introducing new foods!  He asks what he’s having at each meal and simply says “Okay.”  Such a sweet little boyJ


I will be keeping up this blog when we get home…probably more on a weekly basis.  While we are so much closer to our end goal, I’m afraid it will be a long time before our lives are completely “normal” with Gavin eating on his own.  I will be home with Gavin continuing this journey until we can send him back to school.  I think I will probably stand out in the hall at each meal the first week he goes back to daycare to watch him eat on his own!  Let’s pray that day comes before Kindergarten!  

2 comments:

  1. Hey, Sandy! So good to read about all the wonderful progress you guys have experienced! It's amazing!! Gavin is a trooper--and so are YOU! :) Looking forward to seeing you guys back in the neighborhood next week.

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  2. This is the best news I've heard today, that you both will be heading back to Texas! Once you get settled back in please stop by the school and say hi. We'd LOVE to see you and Gavin. I just want to hug that sweetie. I loved keeping up with the journey and look forward to seeing how well you all adjust once you're back home. Keep up the great work Sandy!

    Love, hugs and prayers,
    Kandi Long

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